Showing posts with label supporting families. Show all posts
Showing posts with label supporting families. Show all posts

Tuesday, March 26, 2013

How Can You Use Social Media to Develop Leaders?


Social Media really lends itself to developing leaders. Social Media can be used to provide new leaders with an opportunity to develop their communication skills. The instant messaging features of Facebook or the ability to hold a live chat using twitter can provide new leaders with an opportunity to use technology to gather, share experiences, ask questions and develop new skills.

Got Writer's Block?  How To Get that Blogpost Written

When working with new leaders it is often important to provide a recipe. In the Guest blogpost above the family leader was asked to share about her experience attending her first national conference.  The organizers provided her with a list of questions to get her started.  The questions included:  How were you picked to attend the conference?  Did you need to submit an application?  What did you do to get ready to attend the conference (did you meet with other members of your state team before the conference?  Did you have to make your travel arrangements?  How did you handle childcare while you were out of town?  What types of clothing did you pack for the trip).  What did you learn during the conference?  How will you bring that information back to your state?  What didn't you know before heading out town, that you wished you had known?

New Role?  Want to Share?

Another way to expand family leadership skills is to ask family leaders who may have new roles, Chair of a Committee, Chair of a Council, or staff to a committee.  To write a few blog posts about this new experience. This type of blogging can help answer questions for other family leaders.  It can provide a forum to explore changing roles, the complications that arise when a family leader moves into a role or when a family leader is also a provider or professional staff. Sharing these experiences can be helpful to other family leaders, and can create a community of practice.


Thursday, March 29, 2012

Family-Directed Assessments

The new Part C regulations have been revised to place additional importance on the voluntary family-directed assessment. For some this is new information, for others it is simply a confirmation of the how to perform initial and ongoing assessments. To create an IFSP that truly serves a child and their family, it is important that families decide if they want to participate in a family-directed assessment, who is involved (parents, grandparents, siblings, caregivers, even a neighbor), and how much to share (everything, something, nothing--though this won't really lead to an effective IFSP). The regulations require that qualified personnel use an assessment tool and an interview when performing a voluntary family-assessment.


Preparation

But how can families prepare? Families report that the initial assessment can be a whilrwind of new information and terms. One way is to provide families with a form that they can fill out before meeting with the assessment team.That form can help families to organize their thoughts, and begin the process of thinking about their concerns, priorities and resources. 


Training

Providing training to families on outcomes, what they are, and how families enrolled in early intervention can develop both child-focused and family-focused outcomes can be beneficial. Families and professionals also need to learn the difference between Part C outcomes and Part B goals. It can also be helpful to inform families and professionals about how goals in Part B can be developed that are student-focused or teacher-focused.

Saturday, February 11, 2012

Finding Information


There are many websites out there catering to the field of early intervention. Yet, anyone who provides training and support to families of young children knows that they continue to say that they are not finding the information that they want or need. What is the disconnect then?

Is it website design?
Many of the websites designed for early intervention programs use words that are not familiar to families who are new to early intervention. In fact, even calling it early intervention can be confusing! Families either have a diagnosis (Down syndrome, Arthrogryposis, Prematurity, microcephaly...) or a concern about a delay (not walking yet, delayed speech, not sitting up...). At the beginning of their journey families often don't know the words or jargon that go with early intervention. It is therefore important to think about what words families use when searching online. What information new families might need or want. Organizations can use a small focus group of families new to early intervention to ask them how they searched, what they searched for and what they were hoping to find. Having this information can help to create a website that provides the information in a way that increases the likelihood that families can find what they need, when they need it.

Is it an issue of focus?
State early intervention programs not only share information with families, they share it with other state agencies, county programs, contracted providers and early childcare programs. Each of these audiences have different needs from the website and different levels of expertise with the terms used in early intervention. Again, when designing or redesigning a website it is important to think about how different users will interact with the site. The site can be organized to have different doors or portals for different types of users. Even when thinking only about families we can think about the difference between families with a diagnosis and those with concerns about delays. Families of potentially eligible children have different questions then families of children who have been determined eligible. And families who have moved into leadership positions--joining family advisory councils, parent to parent programs and state Interagency Coordinating Councils (ICCs)--have different informational needs. Thinking through these different groups and their informational needs can help to insure your website is reaching your intended audience.

Wednesday, February 1, 2012

Sharing federal news



The Office of Civil Rights recently sent letters out to districts across the country regarding how schools define which children have disabilities and how they provide support and assistance to those students.
Guidance Memos
In the not so distant past, a letter such as this guidance letter from OCR one would be sent to districts, who would copy it and send it on to their Directors of Special Education and Principals. Who might add it to their monthly staff meeting discussions. Copies would also be sent out to Parent Training and Information Centers, who would add a blurb in their monthly or quarterly newsletter. And finally, it would be linked to on the US Dept of Education website.

Social Media

Today, however, that same letter has been blogged, tweeted, and Facebooked multiple times.  And this is the second go around for this particular letter! That means that not only is the letter reaching those who are in administration and teaching, and those who are funded to help families with children with disabilities, but also, one can only hope the message is reaching regular folk!





Is there a down-side?

Well, as the article points out the National Association of School Boards is concerned that parent organizations will disseminate the letter, leading to increased parents requesting accommodations. But, perhaps, what it will mean is a move to create a real continuum that includes fully implement RTI (response to intervention), 504 plans and IEPs? Perhaps the move by the University of Florida to merge it's special education and general education programs into one program, that insures that all teachers graduate with a foundation in both disciplines will be implemented elsewhere. In the meantime, I don't see a downside to districts being reminded that just  a child who has a prosthetic limb is still a child with a disability who may need a 504 or IEP plan.  

Monday, January 30, 2012

We're in love...





On Saturday, I posted about Pinterest. Today I am going to show you how I've been using Pinterest for my early intervention work. I began by just looking at all of the different boards out there, and as I mentioned, like Alice you can find yourself in a any number of crazy places!  So let's backtrack and talk about how I found some of my pins.  

Once I realized that I wanted to collect pins that reflected images around early intervention and assistive technology I first searched the kids section. There I found many other images from OTs, PTs, and SLPs and teachers. Then I went back to some of my tried and true websites and started pinning those images as well.  And then I thought, wait a second, I am repinning from others, why not invite those folks to pin to my board?  And you should see how it has exploded, I've added a dozen followers, too!   

Here's another shot of my EI Board, which you can follow here: http://pinterest.com/caseywaid/ei-ideas/


Are you using Pinterest?  If so, I'd like to follow you and read about what you are doing with your boards.

Thursday, December 8, 2011

Bookmarking



With so many websites, videos, and blogs out there, bookmarking is even more important than ever. We are currently grooving on the new Delicious site to keep track of our bookmarks. The new Delicious allows you to create stacks, or interest areas, identify images from the website, etc., and share your stacks with others. You can also follow others stacks.


Why Bookmark?
We would argue why not. But, O.K., we'll bite. Delicious, Reddit, Digg, and other Bookmarking sites, allow you to create lists of sites so that you can quickly find those sites,even when away from your own computer.  Here's an interesting overview of how to use social bookmarking sites, I haven't decided if I completely like the aesthetic, let me know what you think: social bookmarking know how



What Are We Bookmarking?
This week we were researching Assistive Technology, and each time we found a new bookmark we quickly added it to our stack. We can share our stack via email, links or they can be found by other Delicious users who can follow our stack. We can also search Delicious for other stacks.


What Will You Bookmark?
What bookmarks will you create? What will you include in your stacks?

Thursday, November 24, 2011

More on Using Webinars to Inform

Preparing to Present

In our last blog posting, we talked about how to develop an engaging webinar. Now let's turn our attention to the next steps for insuring that your webinar is successful. Once you have your presentation prepared, it is important to practice, practice, practice. I personally don't advocate creating a very tight script, but you should have a loose script for each slide. Your audience can tell if you are reading your script, and to be frank, if that's what you are doing, they'd rather you emailed them the script and let them read it.  Decide beforehand how you'l handle the chat.  Will you, as the presenter, scan the chat and read it aloud? Will you have the producer read the questions/comments at certain points during the presentation? You will notice that I have only spoken about how to minimize the cognitive load of the learner--I don't want to scare you, but the cognitive load on the presenter is quite high. So be prepared. I estimate that the load is twice as high as a F2F training. You will be tired--but if your learners enjoyed your session and got a lot out of it it is all worth it.

Preparing for Disaster
OK, that sounds bad, but really, it is important to think about what you will do if the video suddenly crashes, or if the audio isn't working.  I use two computers whenever I am presenting. I log in to one as a moderator and the other as a guest. That way if one suddenly crashes, I can hopefully stay connected via the second one. I prefer using VOIP to present, but will call-in using a phone line in a pinch. You should be very familiar with how to troubleshoot the audio and video before your first webinar. I also print out a copy of my PowerPoint--I lie, I print out two, one has each slide individually, the other has the outline with the trainer notes. I also prefer to give learners a second phone number and email address that will connect them directly with the producer. That way, everyone on the line isn't listening as the producer troubleshoots Susie's problems with her java download. 
Once I have my redundancies in place, I hope for the best and if the worst happens I try to keep calm and carry on. Remember, your learners won't know if things are not going as planned if you don't let them know!  

Wednesday, November 9, 2011

Using Social Media to Affect Change




Potential Policy Changes for Part C
Social media can be used to help individuals and organizations to affect change, to influence policies and to stay informed.
Staying Informed  
It is important to be aware of current policies.  Many federal and state programs maintain websites.  These websites can keep you informed about the current policies and proposed policy changes.  For instance, the US Department of Education hosts a website about Part C of IDEA.  The US Department of Education also funds technical assistance centers that share information, like NECTAC.   It is a good idea to subscribe to email lists run by your state programs.  The New York State Department of Health has a subscriber list, some localities, like the New York City Department of Health and Mental Hygiene, has an RSS feed.  You can also create your own google alert to let you know when something new is added to the internet.

Monday, November 7, 2011

Web 2.0 Can Help Provide Families with Basic Information




Families Need Basic Information
When families first discover that their child has a diagnosed disability or they suspect that s/he has a delay, they need basic information about how early intervention works.  Let's think about how Web 2.0 can help families think about:

Sunday, November 6, 2011

Can Web 2.0 Support Families?




There are a number of factors to consider when deciding whether or not to use social media to interact with potential website visitors.  In order to make that decision it is important to look at the current social media landscape, your company’s focus and your website.


What is Web 2.0?Web 2.0 means that users are no longer limited by what they can find and download (Web 1.0).  Now users can upload and create their own internet content without needing extensive expertise in programming code.  Users can also refashion what they have found elsewhere and link it to their own work and that of others[i].    It is important to recognize that information posted to the web will be repurposed and repackaged by users.  It is also important to stay connected to a site’s users, to identify user’s informational needs and how they are repackaging information found your site.  One way of doing this is to use other social media sites to both drive users to your site and to interact with them.  


Social Media Can Support Families Enrolled in Early Intervention


Welcome!
If you have heard of social media, but haven't had the time to figure out how to use it to reach families of young children with disabilities, this is the blog for you! If you have a Facebook fanpage but you haven't figured out how to make the most of it, this is the place for you! The internet is exploding with new ways to find, share and inform families of young children with disabilities.  Many families of children with disabilities are comfortable with these platforms, but they continue to report that they are not finding the facts or support that they need from official channels. These new platforms can help you to build your brand, support your existing website and keep families and professionals informed.


We'll discuss how web 2.0 is a game-changer, what it means for families and providers, and more importantly, how to use different social media platforms to reach families and share information. We will discuss why it is important to create a social media plan, how Facebook, YouTube, LinkedIn and other social media platforms work and how to use them effectively. We'll also talk about how to inform and engage families and professionals without violating their privacy rights or spending 24/7 at your computer.