Trusted Administrators

Facebook has expanded the ability of users to have more than one person operate a Facebook page. This can be a great way to increase family leadership.  

First Things First

Before handing over the reins to your Facebook Page, it is a good idea to have a written communication plan.  This plan can be quite simple, but should outline the objectives that your organization hopes to achieve by using Facebook. It might be as simple as increasing traffic to your website, or encouraging visitors to take action on a particular activity, or it may be that you are interested in informing others about issues. A good place to start is the SocialFish white paper on social media policies. This white paper really helps users to think about the various levels of awareness and responsibility that different members might have for the organization's social media activities.

Whatever your objective, starting with a plan can guide you as you determine your page's "voice".  It is also important to be explicit with other administrator's about your expectations. Your page probably isn't the place to discuss who you are rooting for in the Super Bowl--unless your page is focused on sports fans--but, using the Super Bowl as a topic you might be able to generate interest in your page.  For instance, if your page is focused on young children with disabilities, asking how families include their child in big family events like a Super Bowl party might be a great way to generate discussion. Or you might want to talk about recent letter  from the US Department of Education regarding the importance of insuring that children with disabilities have access to school sports.

Using a communication plan can help you to schedule your posts and stay consistent with your level of activity.

Now what?

Now that you have your objectives clarified and have a communication plan in place it is time to encourage others to assist with managing the page. It will get messy. This is an opportunity to practice, post and evaluate. Remember, if all of your posts are "safe" or tame, you will not generate much buzz. On the other hand, buzzworthy posts often generate strong opinions.  It will be up to leadership to determine how much controversy is to much. Setting aside time to review posts and discuss how people are deciding what to post and when is a good way to insure that everyone is staying true to the organization's message. Generally, it is a good idea to begin by setting a timetable to review activity, rather than waiting for a misstep to schedule a discussion.

Is there another way to generate activity?

If you aren't ready to turn over the reins, or believe that you might need to spend more time supporting other content creators, there are other ways to increase your reach. One way to increase activity, without sharing administration of your page, is to ask others to share and re-share your content.  You can even create multiple sample posts, that connect with the posts shared on your page and encourage family leaders to share your page to their own timeline.  This can have a two-fold advantage, as it can increase your reach, and it can help model how to  craft an effective post.

Using YouTube to Inform

Despite being owned by Google, YouTube is still the number one search engine. While most of the videos on YouTube are there for entertainment value, there are many educational videos out there.

Finding Videos

The US Department of Education has a YouTube channel with hundreds of videos. Many of the technical assistance centers funded by the US Dept of Ed also have their own YouTube channels with hundreds of uploaded videos. Channels funded with education dollars include: 

The National Early Childhood Technical Assistance Center has many wonderful training videos. The Technical Assistance Center on Social and Emotional Intervention for Young Children or TACSEI channel has wonderful videos about supporting young children's social and emotional development. There are also YouTube channels featuring the work of many of the Parent and Training and Information Centers, which are funded with funds from Part D of the Individuals with Disabilities Education Act (IDEA).  

Creating Playlists

One way to make it easier for families, and the professionals who support them, to find high quality videos that address their informational needs is to create playlists. Playlists can be grouped by topic area, for instance, Assistive Technology, or Social and Emotional Interventions. Another great option is to use your YouTube channel to feature different videos.  An organization might choose to showcase a different video each month.  

How are Families Using Their Own Videos to Inform and Support?

Creating, and even editing, videos is getting so easy these days. Many phones take high quality video. Families of young children with disabilities use their phones to take and share videos. These videos may be used to show their children's strengths or to illustrate specific challenges. Families use video to celebrate hard won achievements, like those first steps, or the first time a child figures out how to propel their wheelchair. Families often share videos with one another, this can be particularly helpful when a child is resistant to using new equipment, or when a parent might want to see how someone else coaches their child to try something new.  It is important that the professionals who support families be aware of these practices and provide guidance to families on how they can protect their privacy.   Using video can definitely help families to feel supported, however families need to be aware that once videos are out on the web, they have little control over who sees or shares them.

How Can You Use Social Media to Develop Leaders?

Social Media really lends itself to developing leaders. Social Media can be used to provide new leaders with an opportunity to develop their communication skills. The instant messaging features of Facebook or the ability to hold a live chat using twitter can provide new leaders with an opportunity to use technology to gather, share experiences, ask questions and develop new skills.

Got Writer's Block?  How To Get that Blogpost Written

When working with new leaders it is often important to provide a recipe. In the Guest blogpost above the family leader was asked to share about her experience attending her first national conference.  The organizers provided her with a list of questions to get her started.  The questions included:  How were you picked to attend the conference?  Did you need to submit an application?  What did you do to get ready to attend the conference (did you meet with other members of your state team before the conference?  Did you have to make your travel arrangements?  How did you handle childcare while you were out of town?  What types of clothing did you pack for the trip).  What did you learn during the conference?  How will you bring that information back to your state?  What didn't you know before heading out town, that you wished you had known?

New Role?  Want to Share?

Another way to expand family leadership skills is to ask family leaders who may have new roles, Chair of a Committee, Chair of a Council, or staff to a committee.  To write a few blog posts about this new experience. This type of blogging can help answer questions for other family leaders.  It can provide a forum to explore changing roles, the complications that arise when a family leader moves into a role or when a family leader is also a provider or professional staff. Sharing these experiences can be helpful to other family leaders, and can create a community of practice.

Gentle Corrections

While the disability movement has a long and rich history, many families who find themselves raising a child with a disability often have no clue about it. Families learn their child has a diagnosis from a doctor or evaluator, or they notice that their child is missing developmental milestones over time. Others may refer a family to a program, or suggest they contact their local school district for supports and services.

What is the History of the Disability Movement?

Over time, families learn about the laws and policies that affect what supports and services might be available to their child and family. They may begin to research their child's specific disability or join support groups.This quest for support and services does not always mean that families are connected to groups that can educate them about the history of the disability movement. They may not learn about Justin Dart or Ed Roberts, they might never encounter Norman Kunc. They may not learn that before Geraldo Rivera was famous for getting hit with a chair by a skinhead, he had exposed New York State's approach to people with disabilities by filming the horrible conditions at Willowbrook. Thus families may not realize that people with disabilities, their families and the professionals who support them, have worked together to change how disabilities are viewed in our culture. Families might not know about the importance of using People First Language or using a strength-based approach to supporting people with disabilities.

How do we inform others about the Disability Movement?

It is important that family leaders and professionals share information about the history of the disability movement. Using anniversary dates or linking current activities to past activities can be helpful to insuring that families learn about the history of the disability movement. There are many wonderful YouTube videos which show the movement's activities to end the prevalence of institutions.

What Do I Do if I See Someone Using Non-People-First Language?

The first caveat is that it is never a good idea to call someone out for saying they have an Autistic son, or that their Uncle Bob is mentally ill. You'll only manage to embarrass them, and they will end up being defensive. Instead, modelling is the best first route. Mention that you have a wonderful daughter who loves to paint, is very physically active and has Down syndrome. When you see articles written by journalists, sending them a quick note thanking them for their article and ask that they use people first language or refrain from stating that a person is wheelchair bound, but rather that that person uses a wheelchair for mobility. And always share links to good references on the topic like Kathy Snow's Disability is Natural website. 

Creating a Communications Plan

One of the board's I sit on is reevaluating how it is communicating with its membership. To be honest, that makes it sound like we've been communicating. Unfortunately, we've been too busy doing, to communicate. However, we know that we cannot grow or really be successful if we don't stop for a bit and think about how we communicate.

Self-Assessment
We are using our communications campaign as an adjunct to our membership recruitment campaign. Our first step was to survey our current members so that we could have a better idea of who are members are and what they need from the organization. We also asked them if they had interacted with our website, Facebook fanpage, twitter stream or our website. We then looked at our organization's stated mission and compared that to our current membership.


Making a Plan
The next step was to decide on our outcome. Our communications outcome is to increase membership. We needed to decide how we could use our communication strategy to increase membership. Now I'm  not going to give the particulars of our plan, but we decided that we needed a calendar that identified topic areas for each month, then we needed to insure that our information was posted across our different sites. 


Wait we aren't all proficient with social media
We needed to take a step back. It turns out we needed to go over how to do effectively use each of our media sites. We needed to learn how to use the sites as ourselves and as the organization. We needed to prepare primers on how to use each site. We also needed to have a short campaign to show the board how to share information across platforms. 

Finding Information

There are many websites out there catering to the field of early intervention. Yet, anyone who provides training and support to families of young children knows that they continue to say that they are not finding the information that they want or need. What is the disconnect then?

Is it website design?

Many of the websites designed for early intervention programs use words that are not familiar to families who are new to early intervention. In fact, even calling it early intervention can be confusing! Families either have a diagnosis (Down syndrome, Arthrogryposis, Prematurity, microcephaly...) or a concern about a delay (not walking yet, delayed speech, not sitting up...). At the beginning of their journey families often don't know the words or jargon that go with early intervention. It is therefore important to think about what words families use when searching online. What information new families might need or want. Organizations can use a small focus group of families new to early intervention to ask them how they searched, what they searched for and what they were hoping to find. Having this information can help to create a website that provides the information in a way that increases the likelihood that families can find what they need, when they need it.

Is it an issue of focus?
State early intervention programs not only share information with families, they share it with other state agencies, county programs, contracted providers and early childcare programs. Each of these audiences have different needs from the website and different levels of expertise with the terms used in early intervention. Again, when designing or redesigning a website it is important to think about how different users will interact with the site. The site can be organized to have different doors or portals for different types of users. Even when thinking only about families we can think about the difference between families with a diagnosis and those with concerns about delays. Families of potentially eligible children have different questions then families of children who have been determined eligible. And families who have moved into leadership positions--joining family advisory councils, parent to parent programs and state Interagency Coordinating Councils (ICCs)--have different informational needs. Thinking through these different groups and their informational needs can help to insure your website is reaching your intended audience.